The Impact of Social Media on Organ Donation, Thanks to
Helene Campbell
Helene Campbell is likely someone you’ve seen on TV in the
last year. She underwent a double lung transplant in Toronto in the spring of
2012 and became a international sensation through her use of Social Media to
raise awareness on organ donor registrations.
At age 20, Helene was diagnosed with Idiopathic Pulmonary Fibrosis (IPF) and required a double
lung transplant. In the Globe and Mail article titled Transplant Hope – Use Social
Media to Save Lives, Helene writes how this diagnosis changed her life,
and the financial impact this transplant had on her and her family. To raise
money, her friends started a website for Helene, called A Lung Story,
and raised money to help cover the costs of her family’s move from Ottawa to Toronto for
care.
This website was just the beginning to how Helene, her
friends, family and her story helped become a social media sensation and
helped do a world of good to raise awareness and registrations to be an organ
donor.
According to the Globe and Mail article, A Lung Story
quickly gained attention, and after local Ottawa media coverage, attention and
traffic increased to over 30,000 views in just a three month period since it
was created. The website was not only telling Helene’s story, but encouraging
site visitors to register to be an organ donor. As traffic and interest was
growing in Canada and abroad, A Lung Story added links to Canadian and
international registries for organ donation. But the best was yet to come.
Seeing the potential to spread the message even further, a
video was posted on A Lung Story in January 2012, encouraging the public to use
social media to contact Justin Bieber and ask him to help raise organ donation
awareness through his massive social media presence and followers.
The video itself began to
garner attention, and according to Campbell’s article, resulted in 326 donor
registrations that day alone (about six times the daily average of new donor
registrations).
Justin Bieber, with his 16.5 million Twitter followers,
responded days later and Helene’s story was suddenly everywhere thanks to social
media – her website got over 30,000 page views from over 122 countries in 24
hours as per Campbell’s article. That alone is a testament to the power of
social media to spread the message.
But social media was not done with Helene Campbell’s story
yet – culminating with Helene making an appearance on The Ellen DeGeneres Show in February 2012. Again, organ donations
registrations were impacted with over 700 new donor registrations on that day. On
her website, Helene has a page titled "Helene's story in the Media" which lists
countless references to her story and her campaign. This level of visibility and
public interest would never have been possible without her tapping into social
media and using this tool to communicate.
Since then Helene’s website continues to use social media to
increase awareness on becoming an organ donor. Presently her Twitter feed has
over 16,000 followers, and A Lung Story’s Facebook page is highly active. In
summer 2012, Helene began a new social media fueled campaign called Be An Organ Donor Dance Challenge
- challenging the public to create and share dance videos where they ask their
friends and families to register to be an organ donor and to give blood – again
using social media as a tool to get people from across the continent and even
the world to communicate and share in a common positive cause.
I think that Helene and her supporters are pretty brave and
a savvy folk – brave enough to share her struggle in it’s entirely with the
online world, and savvy enough to know how to tap into social media to bring enormous
awareness to a worthy cause. Thanks to Helene’s blogs, her Twitter challenges
to celebrities, her engaging presence on Twitter and Facebook, Helene truly
caught social media’s attention. It’s refreshing to see such online tools, so
frequently used for very mundane and perhaps self centered purposes, be used to
make such an impact on organ donor registration and raising awareness to such a
broad and far reaching audience.
Well done, Helene! Now, readers, let's use social media one last time to prove Helene's efforts have yielded results. Click on the link below to register in Ontario to be an organ donor.
“Social
networks aren’t about Web sites. They’re about experiences.”
Mike
DiLorenzo
I agree with Mike DiLorenzo’s comments regarding Social Networks being
about the experience rather than the actual website.
From where I sit, the users of Social Networks – Facebook, Twitter,
Instagram, etc – aren’t using these networks en masse because the websites are
interesting or flashy or even very engaging.These websites are merely the
vehicle to the Social Media experience. I log onto Facebook at least once a day
not to surf the website, but to experience and be witness to the posts of my
friends via the website. The site allows me to experience a little slice of
their day - to catch a glimpse of my brother’s trip to Berlin, to experience
the anticipation of my old high school friend who is running in the Toronto
Waterfront Marathon, and so forth. It’s like a quick phone call to say hello –
and that’s what keeps me coming back for more.“What’s everyone up to today”I subconsciously
think as I log on each morning. That is a rewarding experience. Mind you, there
are days where I scroll through Facebook and think, “God my friends are boring!
Post something to entertain me!”
Furthermore, the very nature of these Social Networks lend each user a
unique experience – my network of connections on Facebook will be different
than the next person’s, and therefore each of us will have a unique experience
each time we log in. The Social Network websites are not unique for each user –
that’s not what keeps us coming back. It’s the experience we get from visiting
the site and connecting with our online world that has created millions of
users for these networks.
In some ways, I also feel these
Social Networks also lend themselves to a new generation of “keeping up with
the Jones’” – a whole other type of experience. By scrolling through updates or
reading the latest tweet in your network you can’t help but compare the quality
of your shared experience. Was your latest tweet or shared photo as creative or
original as that of your network of contacts? Do your posts on the Social
Network make your life seem exciting, one of a kind or exotic? I admit when my
friends are posting photos of their third trip to Europe this year, I can’t
help but think about how mundane my latest “Is it Friday yet?” post must be in
comparison. A plain old website doesn’t bring about such shallow feelings in me.
For example, if I saw a website about fancy exotic vacations, I generally don’t
think about how my last vacation stacked up. A website is more anonymous – like
Hollywood. It’s so far removed from your reality you know it’s never going to
happen. In comparison, when you look at the content of the Social Network, you’re
looking at the experiences of your peers, friends and family – people of
similar backgrounds and opportunities – a far more realistic experience.
In short, I agree with DiLorenzo – a Social Network website is far more
than just the sum of its parts. It’s truly about the experience one has when
using these sites.
Citation:
Mindjumpers.com, (July 25, 2012). How to Uncover Negative Feedback on Your Facebook Page. Retrieved on October 14, 2012 from http://www.mindjumpers.com/blog/2012/07/negative-feedback
Monsternetworking.com (June 18, 2012). Twitter is Serious, Are You Serious About Using it? Retrieved on October 14, 2012 from http://www.monsterworking.com/2012/06/18/twitter-is-serious-are-you-sereious-about-using-it